A framework for the promotion of ethical benefit sharing in health research

A Bedeker, M Nichols, T Allie, T Tamuhla… - BMJ global …, 2022 - gh.bmj.com
There is an increasing recognition of the importance of including benefit sharing in research
programmes in order to ensure equitable and just distribution of the benefits arising from …

Religious coping in the time of COVID-19 Pandemic in India and Nigeria: Finding of a cross-national community survey

H Fatima, TP Oyetunji, S Mishra… - … Journal of Social …, 2022 - journals.sagepub.com
Background: Religious and spiritual coping strategies is one of the possible tools that can be
used to deal with stress and the negative consequences of life problems and illnesses. The …

[HTML][HTML] COVID-19-related risk perception, anxiety and protective behaviours among Nigerian adults: a cross-sectional study

TP Oyetunji, OA Ogunmola, TT Oyelakin… - Journal of Public …, 2021 - Springer
Background Pandemics such as the current COVID-19 pandemic are often associated with
heightened fear and significant adjustments in health behaviours. Aim This study aimed to …

[HTML][HTML] Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria

A Singh, O Arulogun, J Akinyemi, M Nichols… - Plos one, 2022 - journals.plos.org
Introduction Genomic research and neurobiobanking are expanding globally. Empirical
evidence on the level of awareness and willingness to donate/share biological samples …

Unraveling the ethical, legal, and social implications of Neurobiobanking and Stroke Genomic Research in Africa: a study protocol of the African Neurobiobank for …

RO Akinyemi, C Jenkins, M Nichols… - … journal of qualitative …, 2020 - journals.sagepub.com
The ethical, legal, and social implications (ELSI) of emerging neurobiobanks and data
resources are unclear in an African scientific landscape with unique cultural, linguistic, and …

ACCEPTABILITY OF BROAD CONSENT FOR THE USE AND RE-USE OF DONATED BLOOD SAMPLE AMONG WEST AFRICAN STROKE AND STROKE FREE …

O Olorunsogbon, J Akinyemi, M Ogunronbi… - Journal of Stroke and …, 2023 - Elsevier
Introduction-there is increasing promotion of sample and data use beyond the primary
research in genomic studies. Whilst this has the potential of promoting scientific discovery …

Capacity-Building for Stroke Genomic Research Data Collection: The African Neurobiobank Ethical, Legal, and Social Implications Project Experience

EO Uvere, M Nichols, BR Ojebuyi, SY Isah… - Biopreservation and …, 2023 - liebertpub.com
Background: The fields of stroke genomics, biobanking, and precision medicine are rapidly
expanding in sub-Saharan Africa. However, the ethical, legal, and social implications (ELSI) …

[HTML][HTML] Gender and educational attainment influence willingness to donate organs among older Nigerians: a questionnaire survey

RO Akinyemi, JO Akinyemi, OF Olorunsogbon… - Pan African Medical …, 2020 - ajol.info
Introduction: disparity between the demand for and the supply of organs for transplantation
remains a major public health issue of global concern. This study evaluated the knowledge …

COMMUNICATING ELSI ISSUES IN NEUROBIOBANKING AND STROKE GENOMIC RESEARCH IN AFRICA: PROJECT INTERVENTION TOOLS DEVELOPMENT …

BR Ojebuyi, I Afolami, M Adigun, A Singh… - Journal of Stroke and …, 2023 - Elsevier
Background and aims Activities about appropriate community engagement and
communication of research outcomes with stakeholders have received the attention of …

[HTML][HTML] Research participants' perception of ethical issues in stroke genomics and neurobiobanking research in Africa

A Jegede, O Balogun, OF Olorunsogbon, M Nichols… - medRxiv, 2023 - ncbi.nlm.nih.gov
Background: There is a growing interest in stroke genomics and neurobiobanking research
in Africa. These raise several ethical issues, such as consent, re-use, data sharing, storage …