Table 1

Knowledge needs—service delivery

Service delivery
ElementKnowledge needsExplanation
Information systemsData availability, location and accessibilityWhat data sources are available? Where are the data sources located? Who can access the data sources?
Minimum standards of data qualityWhat is the quality (accuracy and completeness) of data sources?
Is there a minimum standard that would ensure quality (accurate and complete) data?
Purpose of data-capturing sourcesWhat is the main purpose of the data-capturing sources (are they used in clinical audit, reporting to politicians, to inform local policy, etc)?
Data needsWhat type of information should be captured (clinical, patient-reported, process-based, etc)?
Quality carePatients’ perspectives of quality healthcareWhat do patients want in terms of care processes and experiences (what does success look like to them)?
Patient-reported outcomesWhat do patients want in terms of clinical outcomes (what does clinical success look like for them)? Are outcomes well defined in the region?
Availability of resourcesWhat necessary resources are available for providers to provide quality care?
Providers’ perspectives of quality healthcareWhat does quality healthcare look like to providers?
CommunicationAvailable patient informationWhat information is available to patients to assist them in making decisions about their surgical care?
Communication platformWhat current and alternative communication platforms exist in surgical healthcare?
Current and desired information flowWhat is the current and desired process by which information is delivered and integrated?
Language barriersAre there language barriers that prevent patients from understanding information about surgical healthcare? If so, how can they be overcome?
Cultural barriersAre there cultural sensitivities that exist around surgical healthcare experience? If so, what are the conditions that can be put in place so they are better respected?
Population’s literacy-levelWhat is the literacy level of the surgical population and how does this affect patient–provider communication?
Access to careSocial and family responsibilitiesWhat are the social/family responsibilities that hinder patients from seeking care?
Patients’ perspectives of barriers (including costs)Patients’ perspectives of barriers (including costs)
Patients’ perspectives of need for surgical careWhat are patients’ perspectives concerning surgical conditions and surgical treatment, including invasive procedures?
Transport barriersWhat are barriers to efficient use of prehospital transport (ambulance, public, personal, interfacility, etc)?
Existing care provisionWhat care-provision resources are currently available (situational analysis of facilities, staff availability and knowledge, referral systems)?
Burden of diseaseWhat is the burden of disease?
Costing of services and resourcesWhat is the cost of services and resources that ensure quality care?
Patients’ perspectives of follow-up careWhat are patients’ experiences, perceptions and desires concerning follow-up care?