Table 3

Adapted Santana framework incorporating additional themes from the empirical evidence (presented in bold text)

S1. Creating a PCC culture subdomain
 S1a. Core values and philosophy of the organisation
 S1b. Establishing operational definition of PCC
S2. Co- designing the development and implementation of educational programs
Standardised PCC training in all healthcare professional programs
  • Training in holistic perception of human organism

  • Training for non-clinical staff in providing compassionate and co-ordinated PCC

S3. Co- designing the development and implementation of health promotion and prevention programs
 S3a. Collaboration and empowerment of patients, communities and organisations in design of programs
S4. Supporting a workforce committed to PCC
 S4a. Ensure resources for staff to practice PCC
 S4b. Ensure strong team leadership around PCC
S5. Providing a supportive and accommodating PCC environment
 S5a. Designing healthcare facilities and services promoting PCC
 S5b. Integrating organisation-wide services promoting PCC
S6. Developing and integrating structures to support health information technology
Common e-health platform for health information exchange across providers and patients
S7. Creating structures to measure and monitor PCC performance
Co-design and develop framework for measurement, monitoring and evaluation
S.8 Structuring service organisation to enable continuity of care and patient navigation
 S8a. Simplification of care pathways to ease patient navigation
 S8b. Appointment system structured to allow patients to see same professionals over time
 S8c. Structures enabling flexibility in service delivery and care practice.
 S8d. Establishing cooperation pathways across specialisms and institutions
P1. Cultivating communication
 P1a. Listening to patients
 P1b. Sharing information
 P1c. Discussing care plans with patients
P2. Respectful and compassionate care
 P2a. Being responsive to preferences, needs and values
 P2b. Providing supportive care
 P2c. Promoting continuation of normality and self-identity
  • Support for participating in regular personal life activities

  • Providing meaningful activities for inpatients

P3. Engaging patients in managing their care
Co-designing care plans with patients

P4. Integration of care
Communication and information sharing for coordination and continuity of care across the continuum of care
  • Between healthcare providers

  • Referrals to specialist

  • Discharge communication

  • Providing access to information and resources

  • Cooperation across specialisms and institutions

P5. Family and friends’ involvement and support
 P5a. Involving family/friends in information-sharing and decision-making
 P5b. Addressing the needs of family/friends
O1. Access to care
 O1a. Timely access to care Components
 O1b. Care availability
 O1c. Financial burden
O2. Patient-Reported Outcomes (PROs)
 O2a. Patient-Reported Outcomes Measures (PROMs)
 O2b. Patient-Reported Experiences (PREMs)
 O2c.Patient-Reported Adverse Outcomes (PRAOs)