Table 1

Representative quotations on patient-related, family-related and society-related challenges

ChallengeRepresentative quotation
Presentation with advanced illnessQ1. Even at the time of admission (to the hospital), the doctor said that his illness was too advanced. So the doctor advised me to take care of him at home… Three days after talking to the doctor my father died. (Family member of a man with a prior treatment history).
Alcohol use disorderQ2. He consumed alcohol. For that reason, he didn’t take TB medications properly. (Family member of a man with a prior treatment history).
DepressionQ3. I stopped my treatment due to depression, because I came to know I had TB. (Man with a prior treatment history)
Attending family function or festivalQ4. I went back to my native village for (my grandfather’s) funeral rites. I had to take care of all formalities… I couldn’t go back to pick up my TB test report on time. (Man without a prior treatment history)
Lack of social support from family members
Q5. No one is there to take care of me; even my children are ignoring me. (Man with a prior treatment history)
Q6. My husband works as a watchman, so there is no one to pick me up from the hospital. (Woman with a prior treatment history)
Work constraintsQ7. I had to go to Bangalore for some work, so I was not able to start tablets at that time. (Man with a prior treatment history)
PovertyQ8. I did not bring my brother immediately (to the hospital) because we don’t have the money. (Family member of a man with a prior treatment history)
HomelessnessQ9. We don’t have a house; we lived on the platform (Indian term for homelessness) for 9 months. (Family member of a man without a prior treatment history)
  • TB, tuberculosis.