Introduction
The COVID-19 pandemic highlighted the need to prioritise mature digital health and data governance at both national and supranational levels to guarantee future health security. The Riyadh Declaration on Digital Health1 was formulated during the Riyadh Global Digital Health Summit, a landmark forum held in 2020 that highlighted the importance of digital technology, data and innovation for resilient global health and care systems. At the summit, a panel of 13 experts articulated 7 key priorities and 9 recommendations (box 1) for data and digital health that need to be adopted by the global health community to address future pandemics and health threats.
Recommendations from the Riyadh Global Digital Health Summit
Implement data-driven and evidence-based protocols for clear and effective communication with common messaging to build citizens’ trust.
Work with global stakeholders to confront propagation of misinformation or disinformation through social media platforms and mass media.
Implement a standard global minimum dataset for public health data reporting and a data governance structure tailored to communicable diseases.
Ensure countries prioritise digital health, particularly, improving digital health infrastructure and reaching digital maturity.
Enable health and care organisations by providing the necessary technology to collect high-quality data in a timely way and promote sharing to create health intelligence.
Cultivate a health and care workforce with the knowledge, skills and training in data and digital technologies required to address current and future public health challenges.
Ensure surveillance systems combine an effective public health response with respect for ethical and privacy principles.
Develop digital personal tools and services to support comprehensive health programmes (in disease prevention, testing, management and vaccination) globally.
Maintain, continue to fund and innovate surveillance systems as a core component of the connected global health system for rapid preparedness and optimal global responses.
The Riyadh Declaration on Digital Health was a call to action to create the infrastructure needed to share effective digital health evidence-based practices and high-quality, real-time data locally and globally to provide actionable information to more health systems and countries. Here, we expand on each recommendation and provide an evidence-based roadmap for their implementation and a toolkit to enhance global health security by preparing for future health threats through robust digital public health leadership (see table 1). The Riyadh Declaration was borne out of the COVID-19 pandemic and therefore the recommendations and solutions are applicable to communicable diseases. However, it is also important to note that the digital transformation of health applies to every area of healthcare and the threats to it, not least other impending threats such as the effects of climate change, making this roadmap also applicable and generalisable to non-communicable disease.
Recommendation 1: implement data-driven and evidence-based protocols for clear and effective communication with common messaging to build citizens’ trust
Rationale and evidence
Data-driven initiatives could considerably improve information gathering and decision making, but there remain methodological concerns about bias, lack of transparency and misguided/misinterpreted information fuelling further infodemics.2 Clear and effective communication is necessary for more nuanced knowledge production and implementation.3 Experience from other infectious disease epidemics (eg, Zika virus, ebolavirus) demonstrated a need to develop and disseminate accurate information to successfully empower affected local communities.4 Validating those observations, the COVID-19 pandemic additionally highlighted the role of social media in the speed and penetration of misinformation, often interfering with citizens’ ability to trust and follow accurate health advice to protect individual and community health.5
Key requirements for implementation
The implementation of postpandemic protocols requires a shift towards contextually sensitive communication strategies, as effective healthcare communication is not simply about messaging. Instead, there exists an interactive, iterative process of information collection and exchange, inclusive of opinions and reactions by individuals, population groups and institutions to different risk aspects.6 7 New models must consider a context of continuously evolving technical and clinical knowledge and simultaneously acknowledge uncertainty.8 In the case of the latter, prioritising transparency and the rationale for decision making (including evidence, ie, used in decision making) can prove effective when communicated with empathy.9 Postpandemic protocols should anticipate disagreement to emerge at many levels, for example, due to the contestation of available data and/or expertise10 11; the legitimacy of decision making12–14 and competing values,6 15 16 especially in areas that can cut across a range of policy areas and disciplinary boundaries.
Data-driven and evidence-based protocols must also move beyond a static perspective of a single link between an evidence base and an optimal public health communication strategy; multiple facets might need to be considered and communications developed ongoingly. Postpandemic protocols need to acknowledge that communication delivery and message development are interdependent, impacting the eventual success of implementation and citizens’ trust. As citizens’ engagement with and response to public health information are influenced by their cultural and social identity,17 these latter factors will also determine what is perceived as a ‘trustworthy authority’ disseminating the public health information, and what type of medical leadership would be most effective.18 19
Recommendation 2: work with global stakeholders to confront propagation of misinformation or disinformation through social media platforms and mass media
Rationale and evidence
The propagation of health misinformation is gaining more attention as a significant public health concern.20–22 Given the growing popularity of different social media platforms and their potential in propagating misinformation, the ability to judge the credibility of information and what constitutes a ‘trustworthy authority’ becomes crucial.23 24 It is also becoming increasingly difficult to disentangle online news from users’ perspectives, regardless of authenticity and/or accuracy.25 Importantly, objective facts can be less influential in shaping public opinion than those appealing to emotions and personal beliefs.26
Key requirements for implementation
A multifaceted approach is necessary to combat misinformation. Using the four pillars of infodemic management recently proposed by the WHO as a basis,27 such an approach would involve: (1) the development of at different levels (organisational, national, regional) through investment in appropriate toolkits to perform such tasks (eg, extracting structured information from unstructured texts)28; (2) the development of a fact-checking culture with the appropriate reach and speed to counter misinformation29 supported by a network of related activities, such as news organisations striving to improve on their transparency and ‘findability’30; (3) greater streamlining of standards and legal frameworks, so that the above actions and activities are firmly based on grounds of legitimacy and transparency (eg, the Code of Principles from the International Fact-Checking Network https://www.ifcncodeofprinciples.poynter.org) and the 2017 Joint UN, OSCE and OAS Declaration on ‘Fake News’, Disinformation and Propaganda (https://www.osce.org/files/f/documents/6/8/302796.pdf), which help to provide a common legal understanding and (4) national efforts to improve digital literacy, as part of national development programmes, to improve citizens’ resilience to misinformation.31
Recommendation 3: implement a standard global minimum dataset for public health data reporting and a data governance structure tailored to communicable and non-communicable diseases
Rationale and evidence
The use of sophisticated tools and methodologies such as artificial intelligence (AI) in addressing pandemics relies on leveraging large amounts of rich data that must accurately capture the situations and context intended to be modelled. Collecting and sharing high-quality data for AI tasks is challenged by the many different types of data representing health, such as social determinants of health (SDOH), clinical care and behavioural patterns32 and its intrinsic heterogeneity governed by variable reporting and clinical practice. Models that do not account for this heterogeneity often fail to generalise. Overcoming this challenge requires novel approaches to capturing high-quality data, standardising disparate data and strengthening our capacity to learn from multimodal data.
Key requirements for implementation
A first key requirement is to capture complex and relevant health data. Health and healthcare are complex and multidimensional, especially in the global environment, but health mostly happens in our neighbourhood. SDOH (eg, nutritious food, employment, housing access and quality) have a significant impact and often explain more about health status than clinical factors.33 While some of these data such as real-time mobility and social interaction data can be captured from smartphones, other social determinants, such as education, change over years, so are slow to capture. SDOH data require clinical context. Healthcare data can include claims that come from administrative billing databases and electronic health records (EHRs). However, claims data are slow to capture and are limited in their ability to represent social context, and not all countries produce claims data. EHR data, when available, can provide rich clinical information, but this rich information is often stored as natural language text. The massive global variability in populations and social and environmental contexts mandates diversity in data sampling to leverage health and social data globally to address health emergencies.
A second key requirement is the technology and data governance to support standardisation. Standards are essential for sharing and exchanging health data and information. International methodologies and approaches must be supported to standardise data both in and between countries, where ‘standardising’ means the many facets of leveraging data for meaningful insights such as data structure, processes, linkage and analysis.
Standards may pertain to security, data transport, data format or structure, or the meanings of data; common data models standardise the format and representation of data as well as tools that make this transformation easier (eg, OHDSI; https://www.ohdsi.org). Data sharing can be supported through standards for electronic information exchange such as HL7 FHIR, the most common interoperability standard.34 35 A global minimum dataset specifically for pandemics would help focus data collection and standardisation efforts to ensure a basic level of data integrity and usability. Examples include minimum datasets from the European Centre for Disease Prevention (ECDC), Centers for Disease Control and Prevention (CDC) and WHO to lead to international exchange of information about outbreaks. Managing the availability, usability, integrity and security of these data also depends on data governance, which should recognise disparities between countries in their capacity to leverage health data for large-scale analytics. Furthermore, since data relevant to addressing a global pandemic comes from many different sources, public–private partnerships can help to build a global ecosystem where data is routinely collected, standardised and shared for use, for example, through the WHO Data Platform, which provides access to health-related data for all Member States monitoring global, regional and country trends (https://www.who.int/standards/classifications).
Recommendation 4: ensure countries prioritise digital health, particularly, improving digital health infrastructure and reaching digital maturity
Rationale and evidence
In 2005, the World Health Assembly, through its resolution WHA58.28 on eHealth, urged Member States ‘to consider drawing up a long-term strategic plan for developing and implementing eHealth services…to develop the infrastructure for information technologies for health…to promote equitable, affordable and universal access to their benefits’.36 This aim was reiterated in 2019 by the WHO recommendations on ‘Global strategy on digital health 2020–2025’.37 The vision is to improve healthcare globally by accelerating the development and adoption of appropriate, accessible, scalable and sustainable digital health solutions, developing infrastructure and applications that enable countries to use health data to promote health and well-being for their populations. The case for a coherent digital health strategy was amplified by the COVID-19 pandemic.
Key requirements for implementation
Building the value proposition
Digital health technology infrastructures have been a lifeline during the pandemic, providing a ‘new normal’ around engaging patients and the population using digital technologies.38–41 This momentum now needs to be consolidated through clear communication regarding the scale of investment, multidimensional outcomes, organisational impacts and value of digital health infrastructures for improving care coordination, quality, and, ultimately, the health of the population at large.42
Building the knowledge base
Leveraging the digital infrastructure to better engage with and use the information created during a patient’s healthcare journey can be achieved through research-ready clinical records.43–45 This can be achieved through the identification of a limited, standardised core of research-related components as basic elements across healthcare systems in order to facilitate individual and cooperative clinical research activities,46 47 as well as sentinel event surveillance, such as infectious disease outbreaks.48 49
Integrating data across various sources
The use of data across various sources (clinical, public health and commercial) can leverage the full range of available information and improve healthcare delivery for infectious diseases.50 For this to be successful, protocols must be developed to build interoperability as a natural and seamless element of data sources,51 including information sources outside of ‘mainstream’ healthcare such as patient-generated data.52
Creating a participative, mature culture
Digital infrastructure should be designed to strengthen the patient–clinician interactions through better patient portals, as well as the increased availability of lay-oriented, user-friendly, clinical and non-medical health data. However, this requires that participation barriers to such infrastructure remain low and complexity is incremental.53 A learning culture also incorporates the need for constant improvement through evaluation and innovation as an important component to eventually achieving digital maturity (figure 1).
Building confidence in the use and security of the system
Developing secure processes for key elements including data gathering and use is an integral part of digital health infrastructure,54 while also accommodating specific needs, local innovation and evolvability,55 that is, a nuanced approach in the systems architecture while maintaining security requirements.
Recommendation 5: enable health and care organisations by providing the necessary technology to collect high-quality data in a timely way and promote sharing to create health intelligence
Rationale and evidence
Digital tools enable local and global health data gathering from a wide variety of consumer and medical devices as well as more traditional public health data sources like registries, claims data and health record data. However, ethics, privacy and security are paramount requirements that must be considered in the design of the tools and the services that they enable, such as predicting disease hotspots, planning of non-pharmaceutical interventions or vaccination scheduling.