Institutions and diabetes self-care management

Understanding the political and health systems challenges of providing type 2 diabetes self-care management services in low-income and middle-income countries (LMICs) is a new area of scholarly research.1 With respect to health systems and type 2 diabetes policy, several studies have addressed issues such as bureaucratic incapacity (eg, lacking sufficient resources—eg, financial and technical2 3; an insufficient level of primary care personnel and provider education,3 and the government’s need to address provider emotions and attitudes with respect to treatment while defining their roles and responsibilities).4 5 However, we know less about how ongoing economic, political and humanitarian crisis, the fragmentation of primary care institutions, health officials’ preferences and behaviours interact to challenge the provision of type 2 diabetic self-care management services.

In this article, the author addresses this lacuna in the literature in several ways. First, the author underscores the ongoing challenges of primary care institutional fragmentation in providing diabetic self-care management services. However, the author combines this institutional approach with an analysis of ongoing political, economic and humanitarian crisis and its harmful effects on Venezuela’s healthcare system, as well as how these crisis situations perpetuate health officials’ preferences to refrain from providing effective diabetic services. Indeed, while political crisis has in the past provided opportunities and incentives for healthcare reform in Venezuela and other Latin America countries,6 the author’s research suggests that ongoing crisis conditions can generate health official incentives to not only refrain from improving state capacity in providing diabetic services but also to personally benefit from weak state capacity through the squandering of medicine and resources. The author’s research on Venezuela therefore suggests that adequately understanding why governments are both unwilling and incapable of improving type 2 diabetes self-care management services requires a more comprehensive approach that takes context, institutions and bureaucratic interests more seriously.

In the next section, the author provides a brief description of the current state of type 2 diabetes in Venezuela. The author highlights the historical and current epidemiological situation and the contributing factors to the nation’s diabetes situation.

Type 2 diabetes in Venezuela

Within the past several decades, the number of patients with type 2 diabetes has burgeoned in Venezuela. According to Nieto-Martínez et al,7 there were an estimated 1.7 million persons with type 2 diabetes in the nation. Worse still, Nieto-Martínez et al (p. 1334) note that the “…prevalence of uncontrolled T2D (A1C>7%) [for patients undergoing treatment] in Venezuela is 76%, one of the highest in Latin America.”7 A more thorough and up-to-date epidemiological picture of Venezuela’s type 2 diabetic situation is nevertheless constrained by the absence of national population health statistics provided by the government.8 Moreover, according to Contreras et al (p. 320), the Ministry of People’s Power for Health only provides “… extemporaneous publications and do not correspond to a national diabetes detection plan in the country.”8 Data obtained by Contreras et al (p. 320) note that, “For the year 2010, the population prevalence figures for DMT2 in Venezuela ranged from 5.1% to 6.0%, representing an absolute value of between 1 470 500 and 1 730 000 cases/year.’8 Contreras et al (p. 320) also referred to a study by Whiting et al (2011) where he claims that in 2011, in Venezuela, “…the number of DMT2 cases aged between 20 and 79 years … was 1 764 900, for a prevalence consistent with WHO criteria of 10.39% …,”8 while Contreras et al (2020, p. 320) also noted a study by Nieto et al (2017) claiming “…that 12.4% of Venezuelans over the age of 20 have diabetes, and the prevalence has increased from 6.0% in 2010 to 12.4% in 2017.”8

In recent years, the diabetic community’s ability to successfully control its blood glucose level does not appear as successful. Ideally, the blood glucose of a patient with diabetes should be “…between 4 and 7 mmol/L” (Editor, 2019, p.1). As figure 1 illustrates, however, the WHO (2021) reports that Venezuela has consistently scored above 7 since the year 2000, at which point it reached 7.2, increasing to 8.8 in 2014 (WHO, 2021). This seems to suggest that patients with diabetes have not been able to adequately control their blood sugar levels.

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Figure 1

Venezuela's Raised Fasting Blood Glucose Situation.

Unlike other countries in Latin America, however, the nutrition transition does not appear to have contributed to this rise in type 2 diabetes in Venezuela. In fact, researchers find that Venezuelans have not consumed Western-based foods as frequently as other nations, such as sodas, ultra-processed foods, with citizens instead appearing to consume more basic food staples.9 Surveys found that in mainly urban areas, Venezuelans have primarily enjoyed the consumption of coffee, arepa and cheese, and that the consumption of Western-based foods—though others find are certainly present—7 has been low.9

The government’s food policies also appear to be contributing to Venezuela’s challenging diabetic situation. Specifically, the government’s food subsidies have fuelled the mass consumption of products exhibiting price controls, making them affordable, but high in carbohydrates, sugars and fat.10 In a context of food scarcity, unemployment and poverty, consuming these foods has been much more appealing for many Venezuelans, while vegetables and fruits are increasingly scarce and more expensive.10 Some were of the view that the government’s price controls were “…inadvertently creating a generation of overweight Venezuelans prone to diabetes and hypertension” (Wilson, p. 1).10

Finally, overweight and obesity has also been a risk factor associated with the rise of type 2 diabetes. According to some estimates, by 2015, roughly 70 per cent of the population was overweight and approximately 40 per cent were obese.10

The challenge of diabetes self-care management

With the number of persons with type 2 diabetes increasing, ensuring that patients have access to effective diabetic self-care management services and knowledge has been important. However, several challenges have emerged with ensuring that these outcomes can be achieved.

One reoccurring problem has been reliable access to medication for self-care treatment. In fact, researchers find that there is often a shortage of diabetic medicine and that they are high in prices.11 With the costs for medications high, persons with diabetes have been inconsistent with their treatment and have not had a chance to effectively control their condition.11 12 In other instances, due to fear of not having sufficient access, persons with diabetes have had to purchase more than their share of medication in stores.12 However, the lack of access to medicine in general, as well as medical diagnostics and hospital equipment, has been further compounded by the recent economic and political crisis. In this context, persons with diabetes have tried to obtain medication from elsewhere, at times travelling to neighbouring Colombia to obtain medicine.11

Nevertheless, some type 2 medications appear to be more available in Venezuela. For example, a medication that is commonly used among persons with diabetes to manage blood glucose levels is Metformin. Nieto-Martínez et al7 found that due to price controls imposed by the government that the price for this medication is low and that it is popular in the country. But at the same time, this medication is poorly prescribed by the medical and even non-medical professionals, while also being self-prescribed by persons with diabetes.7 In this context, NGOs (Non-Governmental Organizations) have been asked to step in and help to provide diabetic services.12 Furthermore, research by Nieto-Martínez et al7 finds that prediabetes screening is troubled by a dearth of available biochemical testing examinations for pre-diabetics.

Yet another challenge has been the lack of adequate preparation that public healthcare workers have to provide diabetic self-care management services. Indeed, there is an ongoing need to provide training, such as increased knowledge and education, for nurses and community healthcare workers providing services to patients with diabetes.13

Health systems institutions and policy response

But what accounts for these ongoing challenges in diabetes self-care management services? While one may easily blame the state of political, economic and humanitarian crisis generating a weakened policy response, the author finds this approach to be insufficient on its own. Instead, the author combines this emphasis on contextual crises with its effects on the overall healthcare system, the design and fragmentation of bureaucratic primary care institutions providing diabetic services, and, in a context of ongoing crisis, health officials’ incentives to take advantage of this situation for personal gain.

Going beyond crisis: the importance of politics and institutions

The author’s analysis of the Venezuelan government’s response to its ongoing type 2 diabetes situation and provision of self-care management services has revealed several lessons. Government failure to provide effective self-care management services should not only be attributed to ongoing political, economic and humanitarian crisis situations. The context of crisis can therefore no longer be the primary scapegoat. While crisis conditions have certainly introduced several healthcare challenges, the author has argued that just as important is combining this perspective with the importance of institutional design, specifically the fragmentation of government primary care diabetic services, and the incentives that a deteriorating healthcare system provides for health officials to engage in corrupt behaviour. In this context, it seems that health officials will not have the motivation needed to remain in office and to work with other government officials in helping improve the provision of diabetic self-care management services. Given this situation, future researchers may also consider a ‘Health in All’ policy approach to highlighting these intergovernmental challenges and future needs. Such an approach could emphasise the need for several government sectors, from health to the office of the presidency and other government branches, to work together in integrating health into decision-making and committing to the provision of equitable public health policies benefitting the entire population.22 This approach could also underscore the reasons why health and non-health sectors in Venezuela are perhaps unwilling to collaborate and work towards this goal in the area of diabetes policy.

Furthermore, in this situation, civil society and international NGOs can play an important role in meeting diabetic self-care management needs. However, ongoing political crisis and specifically the Maduro administration’s resistance to international medical assistance and humanitarian aid21 challenges these non-state actors’ ability to provide support to persons with diabetes. Convincing the government to change its views on this situation will be an arduous task. In this situation, the international community, such as through the WHO or the Pan-American Health Organisation (PAHO), can help in pressuring the Maduro administration into allowing international NGOs to play a more important role in the provision of diabetic self-care management services. In 2017, Maduro appeared more receptive to the United Nation’s (UN) advice on increasing access to medicine by working with the UNDP (United Nations Development Programme), although no concrete action has been taken thus far, while emphasising the importance of international health cooperation and assistance.23 Therefore, the time may be ripe for Maduro to pay more attention to the UN and possibly its recommendation that he take the work of NGOs more seriously.

Future research will also need to provide more attention to the interests and motivations of healthcare officials within government. Why is the Maduro administration failing to invest in ensuring healthcare official’s autonomy and stability within government, safeguarding them from public criticism? How is presidential and political party gridlock, that is, between the ruling and opposition political parties, generating few incentives to provide more support to health officials? More research needs to be done in this area.

Several methodological limitations nevertheless hampered the author’s ability to conduct research in Venezuela. First and foremost is the dearth of in-depth scholarly publications, policy reports and government-provided public data on Venezuela’s type 2 diabetes situation. In large part, the absence of these data reflects the government’s unwillingness to release official information and perhaps be interviewed by researchers. As mentioned earlier, for several years, the government has not released data on the prevalence of type 2 diabetes, therefore leaving the scholarly community in the dark with respect to not only disease prevalence but also the diabetic community’s ability to control their glucose level. As mentioned earlier and as provided in figure 1, it seems that the only official data available on diabetic blood glucose levels are currently provided by the WHO.

Finally, the author’s research reveals a need for public health researchers and political scientists to work together in unravelling the political and institutional contexts shaping the provision of diabetic self-care management services. This is a new area of scholarly research,1 one that not only provides alternative insights for policymakers and those providing recommendations to the government, but also information that can hold government officials accountable for their actions. As Venezuela’s political, economic and humanitarian crisis persists, more effort will be needed to establish interdisciplinary scholarly teams that can help address these issues. Insights from Venezuela’s crisis situation may also provide policy recommendations to other LMICs that are consistently impaired by crisis situations, institutional and political instability, and where improved diabetic self-care management services are consistently in need.